Movie Details
Original Language:English
Extraordinary People: The Boys With No Skin
"Boy born with rare ‘Butterfly disease’ that leaves him with no skin refuses surgery because he’s scared of dying on the operating table"Movie
StarringJonathan Gionfriddo
DirectorDanny Beck
46 minDocumentary
Plot
Seventeen-year-old Jonathan Gionfriddo was born with the life-threatening disease Epidermolysis Bullosa, or EB. Most people who have Jon's type of EB will die by the age of thirty as sufferers are prone to infections and skin cancers.
